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Our Story

When our son Gavin was diagnosed at age 2 1/2 with cystic fibrosis, we didn’t have any idea what it was. We knew it was bad, but the panic really set in when we found out it was a genetic disease because I was already 6 months pregnant with our second child. We were shocked when our unborn son, Jake, was diagnosed with cf through amniocentesis two weeks later. We gave ourselves a few weeks to recover from this double diagnosis, but quickly decided to find a way to save our boys.   We knew we had to build an army of people to help – we couldn’t do it on our own – so we named ourselves The Baker Boys’ Battalion, rolled up our sleeves, and went to work.

ShamRockin’ for a Cure was launched in 2009 when our close friends came up with a really cool way to help us in our fight against cystic fibrosis. From the stage of the Ameris Bank Amphitheatre, we’ve watched our army of friends and family grow to epic proportions. ShamRockin’ for a Cure has become our symbol of strength and hope… and has raised more than $2.5 million since inception! Money that goes to support the mission of the CF Foundation, to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care. We are so grateful to the battalion of supporters that stand behind our family and the other CF families like us. Gavin, Jake, and the other 30,000 people in the US fighting this disease deserve to live a full, healthy life and because you’ve joined the Baker Boys’ Battalion, they have a very real chance of seeing that actually happen.

Join us on March 23, 2019 to “eat, drink, and cure CF.”  We will keep ShamRockin’ until CF stands for Cure Found!

xoxox, Pam Baker

BakerFamilybyMarchetButler

photo by Marchet Butler, Butler Family Photography

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ShamRockin' for a Cure
Cystic Fibrosis Foundation
57 Executive Park S, Suite 380
Atlanta, GA 30329
Phone: 404.325.6973 Email: georgia@cff.org

    The Cystic Fibrosis Foundation has unrestricted financial reserves of about 13 times its 2018 budgeted expenses following a one-time royalty sale in 2014. These funds, along with the public’s continuing support, are needed to help accelerate our efforts to pursue a cure for this fatal disease, fund development of new therapies, and help all people with CF live full, productive lives. To obtain a copy of our latest Annual Report, visit https://www.cff.org/About-Us/Reports-and-Financials/, email info@cff.org or call 1-800-FIGHT-CF.

    Important Note on Attendance at Foundation Events: To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function. To further help reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event.

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