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Our Story

When our son Gavin was diagnosed at age 2 1/2 with cystic fibrosis, we didn’t have any idea what it was. The panic really set in when we found out it was a genetic disease because I was already 6 months pregnant with our second child. Sadly, our son Jake was diagnosed with CF through amniocentesis two weeks later. After the initial shock of the double diagnosis wore off, we started looking for a way to save our babies.

ShamRockin’ for a Cure grew out of our friends’ willingness to help us in the fight against cystic fibrosis. From the stage of the Verizon Wireless Amphitheatre, we watched the “army” that was supporting our family and other CF families like us grow to epic proportions. ShamRockin’ for a Cure has become our symbol of strength and hope… and in just seven years, ShamRockin’ for a Cure has raised approximately $1.4 million! Money that goes to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure. We thank the battalion of supporters that stand behind our family and the other CF families like us. Gavin, Jake, and the other 30,000 people fighting this disease deserve to live a full, healthy life! Join us on March 7, 2015 to “eat, drink, and cure CF.” We won’t stop working until CF stands for “Cure Found!”

–Pam Baker

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ShamRockin' for a Cure
Cystic Fibrosis Foundation
2302 Parklake Drive Northeast
Atlanta, Ga 30345
Phone: 404.325.6973 Email: georgia@cff.org

    The Cystic Fibrosis Foundation has unrestricted financial reserves of about 13 times its budgeted annual expenses, following a one-time royalty sale in 2014. These funds, along with the public’s continuing support, are needed to help accelerate our efforts to pursue a lifelong cure for this fatal disease, develop lifesaving new therapies and help all people with CF live full, productive lives. To request a copy of our Strategic Plan, email info@cff.org or call 800 FIGHT-CF.

    Important Note on Attendance at Foundation Events: To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function. To further help reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event.

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