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Our Story

When our son Gavin was diagnosed at age 2 1/2 with cystic fibrosis (CF), we didn’t have any idea what it was. We knew it was bad, but the panic really set in when we found out it was a genetic disease because I was already 6 months pregnant with our second child. We were shocked when our unborn son, Jake, was diagnosed with CF through amniocentesis two weeks later. We gave ourselves a few weeks to recover from this double diagnosis, but quickly decided to find a way to save our boys.   We knew we had to build an army of people to help – we couldn’t do it on our own – so we named ourselves The Baker Boys’ Battalion, rolled up our sleeves, and went to work.

ShamRockin’ for a Cure was launched in 2009 when our close friends came up with a really cool way to help us in our fight against cystic fibrosis. From the stage of the Ameris Bank Amphitheatre, we’ve watched our army of friends and family grow to epic proportions. ShamRockin’ for a Cure has become our symbol of strength and hope… and has raised more than $2.5 million since inception! Money that goes to support the mission of the CF Foundation, to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. We are so grateful to the battalion of supporters that stand behind our family and the other CF families like us. Gavin, Jake, and the other 30,000 people in the US fighting this disease deserve to live a full, healthy life and because you’ve joined the Baker Boys’ Battalion, they have a very real chance of seeing that actually happen.

Join us on March 21, 2020 to “eat, drink, and cure CF.”  We will keep ShamRockin’ until CF stands for Cure Found!

xoxox, Pam Baker


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